Working with Asperger’s

Something I found in my company's website about Autism that I would like to share.

23-Aug-2011 Diederik Weve has a mild form of autism that makes his mind work differently to other people’s. But that’s also a good thing.

Two years ago, Diederik Weve found out he has Asperger syndrome. It’s a mild form of autism which makes his mind work differently to other people’s. But that’s also a good thing. “Many mental disabilities are an ability in disguise, and we just have to make them work for us,” he says.

Diederik Weve has recently joined the disABILITY network in the Netherlands to help break the taboos surrounding autism, and to encourage people to better harness the talents of employees with autism for the company’s benefit.

“People with autism can provide companies like Shell with a sound foundation. Their talents often lie in contributing highly specialised knowledge, as well as providing structure in the form of manuals and procedures,” he says.

Now in his 28th year at Shell, Dutch-born Diederik is a Senior Engineer for noise control in plants, but also designs flare and relief systems. He came to Shell as a graduate chemical engineer and over the years he’s chalked up experience in a good many specialist roles. “In this one, I’m able to apply many elements of my previous jobs in research, operations, modelling and technical safety,” he says.

Two years ago, he was diagnosed with Asperger syndrome. It’s a kind of autism formally known as Autism Spectrum Disorder, ASD, which occurs in people often with average to high IQ, and it means they process information in a different way to most. While they often have difficulty with social communication, they also have a good eye for detail and exceptional focus.

ASD might explain Diederik’s passion for all things technical and mechanical, but it also has a profound effect on the way he thinks and functions. His condition challenges him in three areas – social interaction, seeing the bigger picture, and the brain function needed for handling new or unusual situations.

“A big challenge is dealing with a lack of context,” he says. For example, a colleague calls, asks how he’s doing, mentions an earlier project they worked on, tells him about a new one, and explains how he came up against a problem. “For many people that might be a natural way to deliver and process information, but not for me,” Diederik says. “I need to know where the story ends before its starts, otherwise every twist and turn and change of context is confusing.

“That’s because I have to switch modes – from small-talk and searching my mental archive to capturing new information without memorising lots of trivia, and then trying to work out what they actually want.”

To cope with it Diederik has learned to interrupt his colleagues and ask them directly what they want to know. “This stops me getting frustrated trying to understand what track they’re on.”

He also learned to compensate for his ASD. “Most of this won’t be perceptible at first sight because I mimic what other people do, build a ‘rule base’ of what normal people expect in behaviour, and that generally works.”

Diederik thinks that the key lesson from his own experience is having an awareness of his limits and strengths, which has helped him and others to work much better together. This is what prompted him to become a member of the Shell disABILITY Network, joining many colleagues who’ve been able to overcome physical or sensory impairments to make the most of their talents in Shell.

In a recent interview with Dutch financial daily NRC Handelsblad, Diederik spoke about the contribution that autistic people can make to complex, technical operations like Shell. He said that autistic people had long been stereotyped as mentally disabled. “In a high-tech environment such as Shell it can be difficult because you want your intelligence to stand out. There are autistic individuals who have serious limitations, but there’s a much larger group that doesn’t.”

“disABILITY understands how to focus on my ability rather than my disability, and I want to add mental disabilities to the agenda. My ability contributes to Shell’s bottom line and is an asset to its diversity.”

Diederik says Shell has given him plenty of opportunities that match his abilities and interests. When his managers suggested adding project management to his role, he told them about his ASD and context-blindness. “An open and honest discussion helped them realise that such a move may not be the best for me or for the company. It shows that only in the wrong context does ASD become a disability.”

Ultimately, like any employee at Shell, it is important for autistic individuals to use their initiative to demonstrate what they can achieve. Diederik’s last project was flare software, now it is spreading awareness about autism. He says, “Sometimes I make a conscious contribution that other people aren’t capable of, helping make up for my less strong points. In this way, I feel that I can make a difference for Shell.”

List of People With Autism

ASPERGER

Dan Aykroyd, famous comedian

Phillipa "Pip" Brown (aka Ladyhawke), indie rock musician

Michael Burry, US investment fund manager

Lizzy Clark, actress and campaigner

William Cottrell, student sentenced for fire-bombing SUV dealerships

Paddy Considine, Actor

James Durbin, American singer

Robert Durst, American real estate developer accused of murder

Tim Ellis, Australian magician and author

Peter Howson, Scottish painter

Luke Jackson, author

Heather Kuzmich, fashion model and reality show contestant on America's Next Top Model

Adrian Lamo, American computer hacker

Clay Marzo, American professional surfer

Gary McKinnon, British computer hacker

Robert Napper, British murderer

Jerry Newport, American author and mathematical savant, basis of the film Mozart and the Whale

Craig Nicholls, frontman of the Australian garage rock band, The Vines

Gary Numan, British singer and songwriter

Tim Page, Pulitzer Prize-winning critic and author

Dawn Prince-Hughes, Ph.D., primate anthropologist, ethologist, and author

Nicky Reilly, failed suicide bomber from Britain

John Elder Robison, author of Look Me in the Eye

Vernon L. Smith, Nobel Laureate in economics

Carl Söderholm, speaker in neuropsychiatric disorders

Satoshi Tajiri, creator and designer of Pokémon

Raymond Thompson, New Zealand scriptwriter and TV producer

Liane Holliday Willey, author

HIGH FUNCTIONING AUTISM

Michelle Dawson, autism researcher and autism rights activist

Temple Grandin, food animal handling systems designer and author

Caiseal Mór author, musician, and artist

Hikari Ōe, Japanese composer

Dylan Scott Pierce, wildlife illustrator

Jim Sinclair, autism rights activist

Donna Williams, Australian author; this diagnosis is controversial

Haley Moss, teenage author

AUTISM SPECTRUM

Amanda Baggs, advocate of rights for autistic people

Marty Balin, singer and songwriter with Jefferson Airplane and Jefferson Starship

Lucy Blackman, university educated author

Alonzo Clemons, American clay sculptor

Tony DeBlois, blind American musician

Jonathan Jayne, contestant on American Idol

Christopher Knowles, American poet

Bhumi Jensen, grandson of Bhumibol Adulyadej, King of Thailand

Leslie Lemke, blind American musician

Jonathan Lerman, American artist

Jason McElwain, high school basketball player

Thristan Mendoza, Filipino marimba prodigy

Tito Mukhopadhyay, author, poet, and philosopher

Derek Paravicini, blind British musician

James Henry Pullen, gifted British carpenter

Matt Savage, U.S. autistic jazz prodigy

Birger Sellin, German author

Henriett Seth-F., Hungarian autistic savant, poet, writer and artist

Daniel Tammet, British autistic savant

Richard Wawro, Scottish artist

Stephen Wiltshire, British architectural artist

NOTABLE PARENTS OR SIBLINGS OF PEOPLE WITH AUTISM

Burt Bacharach, composer and Angie Dickinson, actress

Gary Cole and Teddi Siddall, actors

Byron Dafoe, ice hockey goalie and co-founder of Athletes Against Autism

Ernie Els, golfer

Doug Flutie, football player and founder of the Doug Flutie Jr. Foundation for Autism

Robert Gottlieb, former editor of The New Yorker

Olaf Kolzig, ice hockey goalie and co-founder of Athletes Against Autism

Dan Marino, football player

Meaghan Jette Martin, Disney Channel actress/singer

Jenny McCarthy, entertainer and John Mallory Asher, actor/director

Karen McCarron, physician

Scott Mellanby, ice hockey player and co-founder of Athletes Against Autism

Emma Noble, model, actress and TV personality

Holly Robinson Peete and Rodney Peete, actor and former NFL player

Aidan Quinn and Elizabeth Bracco, actors

Curt Schilling, former Major League Baseball player

John Schneider, actor

Sylvester Stallone, actor

Stephen Stills, musician

John Travolta and Kelly Preston, actors

Sociological and cultural aspects of autism

From Wikipedia, the free encyclopedia

Sociological and cultural aspects of autism come into play with recognition of autism, approaches to its support services and therapies, and how autism affects how we define personhood.The autism rights movement is based on a belief that autism is a different way of being and not a disorder to be cured. In contrast, many parents argue for a cure.

Terminology

Although some prefer to use the person-first terminology person with autism, some members of the autistic community prefer autistic person or autistic in formal English, to stress that autism is a part of their identity rather than a disease they have. In addition, phrases like suffers from autism are objectionable to some people.
The autistic community has developed abbreviations for commonly used terms, such as:

• Aspie – a person with Asperger syndrome.
• Autie – an autistic person. It can be contrasted with aspie to refer to those specifically diagnosed with classic autism.
• Autistics and Cousins (AC) — a cover term including aspies, auties, and their "cousins", i.e. people with some autistic traits but no formal diagnosis.
• Curebie – a person with the desire to cure autism. This term is highly derogatory.
• Neurodiversity – tolerance of people regardless of neurological wiring.
• Neurotypical (NT) – an individual who is not on the autism spectrum.

Politics

There is some work in the autism community on raising awareness among neurotypical society, but the very nature of autism makes self-promotion difficult for autistic people.
The autism rights movement encourages autistic people to "embrace their neurodiversity" and encourages society to accept autistics as they are. They advocate giving children more tools to cope with the non-autistic world instead of trying to change them into neurotypicals. They say society should learn to tolerate harmless behaviours such as tics and stims like hand flapping or humming. Autism rights activists say that "tics, like repetitive rocking and violent outbursts" can be managed if others make an effort to understand autistic people, while other autistic traits, "like difficulty with eye contact, with grasping humor or with breaking from routines", wouldn't require corrective efforts if others were more tolerant.
Many people disagree with the aims of the autism rights movement, saying that the movement overstates the gifts associated with autism, which could jeopardize funding for research and treatment. Many parents of children with autism say that the notion of "positive living with autism" has little relevance to them, and that autism rights are for "the high-functioning autistics and Aspies who make up the bulk of the movement". Many parents say that behavioral therapy provides help in caring for children who are sometimes aggressive and that autism exacts a toll on the entire family.
Curing autism is a controversial and politicized issue. The "autistic community" can be divided into several groups. Some seek a cure for autism—sometimes dubbed as pro-cure, others consider a cure unnecessary or unethical, or feel that autism is not a disease.

Community and culture

With the recent increases in autism recognition and new approaches to educating and socializing autistics, an autistic culture has begun to develop. Autistic culture is based on a belief that autism is a unique way of being and not a disorder to be cured.The Aspie world, as it is sometimes called, contains people with Asperger syndrome (AS) and high functioning autism (HFA), and can be linked to three historical trends: the emergence of AS and HFA as labels, the emergence of the disability rights movement, and the rise of the Internet. Autistic communities exist both online and offline; many people use these for support and communication with others like themselves, as the social limitations of autism make it difficult to make friends, to establish support within general society, and to construct an identity within society.
Because many autistics find it easier to communicate online than in person, a large number of online resources are available.Some individuals with autism learn sign language, participate in online chat rooms, discussion boards, and websites, or use communication devices at autism-community social events such as Autreat. The Internet helps bypass non-verbal cues and emotional sharing that autistics find so hard to interact with.It gives autistic individuals a way to communicate and form online communities.Conducting work, conversation and interviews online in chat rooms, rather than via phone calls or personal contact, helps level the playing field for autistics. A New York Times article said "the impact of the Internet on autistics may one day be compared in magnitude to the spread of sign language among the deaf" because it opens new opportunities for communication by filtering out "sensory overload that impedes communication among autistics".
Online interaction has disadvantages. Overreliance on the Internet for social interaction can lead to reduction in already-limited human contact. Much misinformation and fraud is available online. Based on unreliable information, people diagnose themselves with Asperger syndrome and related conditions, and then present themselves as individuals with genuine ASD. Because people with ASD often interpret sources literally, it may be particularly difficult for them to tell whether an online correspondent is lying.

Recognition

World Autism Day

World Autism Day, also called World Autism Awareness Day, is marked on April 2. It was designated by the United Nations General Assembly at the end of 2007. On April 2, 2009, activists left 150 strollers near Central Park in New York City to raise awareness that autism is estimated to affect one in 150 children.There are many celebration activities all over the world on April 2 - World Autism Day. “Autism knows no geographic boundaries — it affects individuals and families on every continent and in every country,” said Suzanne Wright, co-founder of Autism Speaks. “The celebration of World Autism Awareness Day is an important way to help the world better understand the scope of this health crisis and the need for compassion and acceptance for those living with autism. This remarkable day — the first of many to come — promises to be a time of great hope and happiness as we work to build a global autism community.”

Light It Up Blue

In 2010, Autism Speaks launched the Light It Up Blue initiative.Light It Up Blue sees prominent buildings across North America and the world – including the Empire State Building in New York City and the CN Tower in Toronto, Canada – turn their lights blue to raise awareness for autism and to commemorate World Autism Awareness Day.

Autism Sunday

Autism Sunday, also known as the International Day of Prayer for Autism and Asperger Syndrome, is observed on the second Sunday of February. It is supported by church leaders around the world.

Autism Awareness Year

The year 2002 was declared Autism Awareness Year in the United Kingdom—this idea was initiated by Ivan and Charika Corea, parents of a child with autism, Charin.Autism Awareness Year was led by the British Institute of Brain Injured Children, Disabilities Trust, The Shirley Foundation, National Autistic Society, Autism London and 800 organizations in the United Kingdom. It had the personal backing of British Prime Minister Tony Blair. This was the first ever occasion of partnership working on autism on such a huge scale. 2002 Autism Awareness Year helped raise awareness of the serious issues concerning autism and Asperger's Syndrome across the United Kingdom.^[23] A major conference, Autism 2002 was held at the King's Fund in London with debates in the House of Commons and the House of Lords in Westminster. Autism awareness ribbons were worn to mark the year.British autism advocates want autistic people acknowledged as a minority rather than as disabled, because they say that "disability discrimination laws don't protect those who are not disabled but who 'still have something that makes them look or act differently from other people'."But the autism community is split over this issue, and some view this notion as radical.

Autistic pride

Autistic pride refers to pride in autism and shifting views of autism from "disease" to "difference". Autistic pride emphasizes the innate potential in all human phenotypic expressions and celebrates the diversity various neurological types express.
Autistic pride asserts that autistic people are not sick; rather, they have a unique set of characteristics that provide them many rewards and challenges, not unlike their non-autistic peers.Autistic Pride Day is an Aspies for Freedom initiative, celebrated on June 18 each year. It is a day of celebration of the neurodiversity of people on the autism spectrum, compared by autism rights advocates to the civil rights and gay rights movements and even modeled after the Gay pride movement.
At Autreat—an annual autistic gathering—participants compared their movement to gay rights activists, or the Deaf culture, where sign language is preferred over surgery that might restore hearing.Other local organizations have also arisen: for example, a European counterpart, Autscape, was created about 2005.

Asperger syndrome and interpersonal relationships

Individuals with Asperger syndrome (AS) may develop problems in their abilities to successfully engage in interpersonal relationships.

Social impact

Asperger syndrome may lead to problems in social interaction with peers. These problems can be severe or mild depending on the individual. Children with AS are often the target of bullying at school due to their idiosyncratic behavior, precise language, unusual interests, and impaired ability to perceive and respond in socially expected ways to nonverbal cues, particularly in interpersonal conflict. Children with AS may be overly literal, and may have difficulty interpreting and responding to sarcasm, banter, or metaphorical speech. Difficulties with social interaction may also be manifest in a lack of play with other children.
The above problems can even arise in the family; given an unfavorable family environment, the child may be subject to emotional abuse. A child or teen with AS is often puzzled by this mistreatment, unaware of what has been done incorrectly. Unlike other pervasive development disorders, most children with AS want to be social, but fail to socialize successfully, which can lead to later withdrawal and asocial behavior, especially in adolescence.At this stage of life especially, they risk being drawn into unsuitable and inappropriate friendships and social groups. People with AS often interact better with those considerably older or younger than themselves, rather than those within their own age group.
Children with AS often display advanced abilities for their age in language, reading, mathematics, spatial skills, and/or music—sometimes into the "gifted" range—but this may be counterbalanced by considerable delays in other developmental areas. This combination of traits can lead to problems with teachers and other authority figures. A child with AS might be regarded by teachers as a "problem child" or a "poor performer." The child’s extremely low tolerance for what they perceive to be ordinary and mundane tasks, such as typical homework assignments, can easily become frustrating; a teacher may well consider the child arrogant, spiteful, and insubordinate. Lack of support and understanding, in combination with the child's anxieties, can result in problematic behavior (such as severe tantrums, violent and angry outbursts, and withdrawal).

Difficulties in relationships

Two traits sometimes found in AS individuals are mind-blindness (the inability to predict the beliefs and intentions of others) and alexithymia (the inability to identify and interpret emotional signals in oneself or others), which reduce the ability to be empathetically attuned to others.Alexithymia in AS functions as an independent variable relying on different neural networks than those implicated in theory of mind.In fact, lack of Theory of Mind in AS may be a result of a lack of information available to the mind due to the operation of the alexithymic deficit.
A second issue related to alexithymia involves the inability to identify and modulate strong emotions such as sadness or anger, which leaves the individual prone to "sudden affective outbursts such as crying or rage"According to Tony Attwood, the inability to express feelings using words may also predispose the individual to use physical acts to articulate the mood and release the emotional energy.
People with AS report a feeling of being unwillingly detached from the world around them. They may have difficulty finding a life partner or getting married due to poor social skills.The complexity and inconsistency of the social world can pose an extreme challenge for individuals with AS. In the UK Asperger's is covered by the Disability Discrimination Act; those with AS who get treated badly because of it may have some redress. The first case was Hewett v Motorola 2004(sometimes referred to as Hewitt) and the second was Isles v Ealing Council. The same applies in the United States with the Americans with Disabilities Act, amended in 2008 to include autism spectrum disorders.
The intense focus and tendency to work things out logically often grants people with AS a high level of ability in their field of interest. When these special interests coincide with a materially or socially useful task, the person with AS can lead a profitable career and a fulfilled life. The child obsessed with a specific area may succeed in employment related to that area.

Gender aspects

Autism is thought of as a condition mostly affecting males, with males up to four times more likely than females to be diagnosed with autism or Asperger syndrome. Females with autism spectrum disorders are "research orphans" according to Yale's Ami Klin; some drugs used to treat anxiety or hyperactivity that may accompany autism are rarely tested on females with autism.Autism may express differently in the sexes. Females may be more concerned with how they are viewed by peers and the failure to connect with people outside of their immediate family could lead to severe anxiety or clinical depression.Females with autism who have normal intelligence may be more socially disadvantaged than males because of the "rising level of social interaction that comes in middle school," when females' "friendships often hinge on attention to feelings and lots of rapid and nuanced communication." Females may suffer additionally by being placed in specialized educational programs, where they will be surrounded by males and further isolated from female social contacts.Although sample sizes are too small to draw firm conclusions, one study suggests that females may fare worse than males over the long-term in terms of marrying, having families, going to college, having a job, and living on their own. Females may also be different from males in terms of interests; females with autism rarely have interests in numbers or have stores of specialized knowledge.The profile of autism may change as more is understood about females, whose autism may go undiagnosed.

Adults

Communication and social problems often cause difficulties in many areas of an autistic adult's life. A 2008 study found that adults with ASD commonly experience difficulty starting social interactions, longing for greater intimacy, a profound sense of isolation, and effort to develop greater social or self awareness.
A much smaller proportion of adult autistics marry than the general population.It has been hypothesized that people with autism are subject to assortative mating; they tend to mate with each other and produce autistic offspring.This hypothesis has been publicized in the popular press, but has not been empirically tested.
Baron-Cohen said that an increasing technological society has opened up niches for people with Asperger syndrome, who may choose fields that are "highly systematised and predictable." People with AS could do well in workplace roles that are "system-centered, and connect with the nitty-gritty detail of the product or the system."
Effective April 28, 2010, adults with Asperger Syndrome no longer qualify to serve in the United States Military.

Animals

Temple Grandin, autistic designer of cattle handling systems, said that one reason she can easily figure out how a cow would react is because autistic people can easily "think the way that animals think."According to Grandin, animals do not have "complex emotions such as shame or guilt" and they do not think in language. She says that, although not everything about animals is like a person with autism, the similarity is that they think visually and without language. She says people do not make this connection because the study of autism and the study of animal behavior are parallel disciplines involving different individuals.Despite these similarities, the degree to which autistic individuals can be said to think like animals remains undetermined; non-human animals as well as humans have evolved cognitive specializations that may or may not share characteristics with other species.
Dawn Prince-Hughes, diagnosed with Asperger's, describes her observations of gorillas in Songs of the Gorilla Nation.

Scholarship

Autism spectrum disorders received increasing attention from social-science scholars in the early 2000s, with the goals of improving support services and therapies, arguing that autism should be tolerated as a difference not a disorder, and by how autism affects the definition of personhood and identity.Sociological research has also investigated how social institutions, particularly families, cope with the challenges associated with autism.

Media

Much of the public perception of autism is based on its portrayals in novels, biographies, movies, and TV series. Many of these portrayals have been inaccurate, and have contributed to a harmful divergence between public perception and the clinical reality of autism. For example, in the movie Mozart and the Whale (2005), the opening scene gives four clues that a leading character has Asperger syndrome, and two of these clues are extraordinary savant skills. The savant skills are not needed in the film, but in the movies savant skills have become a stereotype for the autism spectrum, regardless of the fact that most autistic people are not savants.
Some works from the 1970s have autistic characters, who are rarely labeled.
Autistic characters also appear in many works by non-autistic authors. Mark Haddon's 2003 novel The Curious Incident of the Dog in the Night-time, has been celebrated for its immersion into the world of its teenage autistic narrator.The Speed of Dark, by Elizabeth Moon, explores the possibility of a cure for autism and its effect on autistics. Margaret Atwood's novel Oryx and Crake has a university labeled Asperger's U, where almost every student appears to have Asperger Syndrome or autism in varying degrees of severity and form. People in the university refer to non-autists as neurotypicals and seem to view them as something altogether different (and perhaps inferior) to themselves.
Children of the Stars is an award-winning documentary about children with autism in China.
My Name Is Khan is a 2010 Bollywood film which shows the lead character played by Shahrukh Khan (Rizwan Khan) suffering from Asperger's syndrome. The movie garnered critical acclaim and shed light on Asperger's syndrome in India.

Savants

An autistic savant is an autistic person with extreme talent in one or more areas of study. Although there is a common association between savant syndrome and autism (an association made popular by the 1988 film Rain Man), most autistic people are not savants and savantism is not unique to autistic people, though there does seem to be some relation. One in ten autistic people may have notable abilities, but prodigious savants like Stephen Wiltshire are very rare; only about 100 such people have been described in the century since savants were first identified, and there are only about 25 living prodigious savants worldwide.

Notable individuals

Notable individuals with autism spectrum disorders represent diverse professions such as anthropology, video game design and television production. Some notable artists, authors and musicians and such figures as Richard Borcherds, a Fields Medal winner,Temple Grandin, a food animal handling systems designer and author,Tim Page, a Pulitzer Prize-winning critic and author and Vernon L. Smith, a Nobel Laureate in economics, also have autism spectrum disorders.
There are many published speculative claims about historical figures who may have had autism spectrum disorders. Henry Cavendish, one of history's foremost scientists, may have been autistic. George Wilson, a notable chemist and physician, wrote a book about Cavendish entitled, The Life of the Honourable Henry Cavendish, published in 1851. From Wilson's detailed description it seems that while Cavendish may have exhibited many classic signs of autism, he nevertheless had an extraordinary mind.Fred Volkmar, a psychiatrist and autism expert at the Yale Child Study Center is skeptical; he says, "There is unfortunately a sort of cottage industry of finding that everyone has Asperger's."

Wadi: A Tale of Autism Part 1

Meet Wadi. A five year old boy who has some interesting quirks, a big fan of Maher Zain and the ASTRO Oasis channel and his favorite snacks are keropoks and Oreos. But underneath all that, the appearance would suggest that there is some distinction between him and other typical kids. Some would say he is not normal as other kids though I would beg to differ as normality is perception based (I like to use the word "typical"). Wadi has ASD. In simpler terms, autism.

Now what is Autism? My wife and I sometimes have a tough time explaining that to friends and families as Autism awareness is very and very low especially in Malaysia. Makes us sometimes wished that we should stop questioning other people morality and start thinking of ways we can improve the quality of our lives(such as in term of better healthcare?). Most folks understand Down Syndrome more than Autism. Also portrayal of Autism in local media like TV3 Cerekarama's Mashitah didnt help either and heavily misleading.(Typical of local malay drama suffering from 'Did-Not-Do-Enough-Research' syndrome. Lazy scriptwriters!)Talking about Wadi with some of our friends can often cause some friction sometimes as some words may be misinterpreted by us and make us feel uncomfortable with their remarks about Wadi. We keep telling ourselves they know not what they say and did not really mean it in a negative way. Those who have Autistic kids will get what I mean.


Now taken straight from Wikipedia on the definition of Autism; Autism is a disorder of neural development characterized by impaired social interaction and communication, and by restricted and repetitive behavior. These signs all begin before a child is three years old. Autism affects information processing in the brain by altering how nerve cells and their synapses connect and organize; how this occurs is not well understood.It is one of three recognized disorders in the autism spectrum (ASDs), the other two being Asperger syndrome, which lacks delays in cognitive development and language, and Pervasive Developmental Disorder-Not Otherwise Specified (commonly abbreviated as PDD-NOS), which is diagnosed when the full set of criteria for autism or Asperger syndrome are not met. From what I understand (and what usually I tell people), Wadi is in his own 'world' with less regard or awareness of his environment and surroundings that delays his development such as speech. He is not interested in socializing with his own peers, have some difficulties in doing certain task like pointing, drinking through a straw, and no eye contact. Sometimes he likes to spin the wheels of his toy car but I would not say it is to the level of obsessiveness. He seldom acknowledges you when you call his name. But of these negative traits are slowly dialed-out as I will explain in later paragraphs.



Now I will write this article in a manner not to make you feel sorry for us but to foster understanding and to educate. I hate it when my wife cries about Wadi especially seeing how much he improves after all our efforts and God's grace. I take it as being ungrateful to God when crying and bemoaning your fate as He has blessed your life in many ways you may have overlooked. My philosophy is, 'you may know your misfortune today, but you never know what fortune you will receive tomorrow that make your life better.' So in the case of Wadi, I think it is wasteful to worry whether he can enter university or be independent living on its own as there is also no guarantee that a neuro-typical child would have a problem of his own. It is a challenge that we have to embrace and accept that we are chosen to overcome it to make us and Wadi a better version of ourselves.

My wife start noticing by 2 years old Wadi has a habit of turning his toy car upside down and playing it by spinning the wheels. It was not that frequent nor did he ever get temperamental when we took the toy car away. He is like simply doesn't care. His verbal skills does not advance much apart from gibberish. At that time my wife has suspicion that Wadi may be Autistic. Now I still get a bad rap for not doing anything about it sooner or especially when friends ask us that question. In my defense, Wadi is my first child and being a father was a new thing for me. I apologize for not making the right decision at that time but I have no regrets of my actions as I am a better person than I was even through the wrong decision that I made. The past is behind and the future is forward and Wadi is improving greatly. That's all that matters.

By this time we are still living in Kerteh where Mesra Mall haven't yet opened. In the daytime, Wadi was in care of one of our good neighbors. His 'pengasuh' had no problem taking care of Wadi. He was pretty easy to manage. Due to the delay of speech, we went to test his hearing at UIA Kuantan Hearing and Speech clinic and confirm that he has no hearing problem. Then we went to Hospital Tunku Ampuan Afzan to see a speech therapist but I feel she was not specialize for Wadi's case. Then I thought of sending him to kindergarten he would learn to socialize but that does not seem to work. The teachers have no issue with him its just that he prefers to be alone. He does not throw tantrums nor having destructive behavior. At least we are thankful for that.

Next we try to see a child psychiatrist at UIA Kuantan. But somehow his approach was not convincing enough and doesn't really gives us good enough advice on what to do. We were a bit crossed that he ask the question to us how do we feel having an autistic child. We were stumped. We dont know what to do. There are too many assumption but no one was able to us answer on how to proceed.

And then something wonderful happened. My wife discovered a new facebook friend, Intan Miranti that promotes ABA therapy for Autism. Through her ANDI initiative, she conducts workshop for parents with autistic kids teach them how to do ABA therapy for their children. We decided to meet her traveling all the way from Kerteh to PJ (and back to Kerteh all in one day).

At our first meeting, she not only explain to us the concept of ABA but also gives us understand about what autism really is. Things that amaze me that she was able to notice some small traits about wadi that we never notice before and gave us some indication that he can learn new skills and achieve breakthrough.We found out that not all doctors or phsciatrist are capable of diagnosis for Autism. The ones who do are only available in KL. Intan suggested to see a Child Behavior Specialist in Sunway Medical Centre to get a proper diagnosis for Wadi.

The ABA workshop consist of 4 session. Seat are limited and there were 10 parents. The first 2 session my wife have to go alone take a flight from Kerteh to Subang while I babysit the kids at home. What is ABA you might ask? From wikipedia; Applied behavior analysis (ABA) is the science of controlling and predicting human behavior. Behavior analysts reject the use of hypothetical constructs and focus on the observable relationship of behavior to the environment. By functionally assessing the relationship between a targeted behavior and the environment, the methods of ABA can be used to change that behavior. Research in applied behavior analysis ranges from behavioral intervention methods to basic research which investigates the rules by which humans adapt and maintain behavior. Through this workshop, we learn the concept of play time, table time, reinforcer, foreshadowing. The goal here is to get his attention even for a few seconds and with the help of reinforcer(things he likes) to increase his attention span and teach him skills such as matching, imitations, receptive instruction and etc.


Trying to apply it at home is a challenge at first. We were struggling. But Wadi did make little progress. We then enlist the help of one of our neighbours daughter who use to babysit for Wadi. Somehow Wadi respond better to strangers than us parents. What took us weeks to teach him only require days with someone else.

Now there are freelance therapist for ABA, but they operate only in KL or PJ area. And there are really particular about logistic i.e. if your house is too far even in Klang Valley, they seldom would take the job. Now this particular time I was having the lowest point in my career as mention in Me, Myself and Nobody Else. We felt that the best option would be to relocate to KL and acquire the services of professional therapist. The rates can be a bit premium but hey, duit boleh dicari. Not saying we are wealthy but I would say God has graciously given us the oppurtunity to make this happen. Barangkali ia rezeki untuk Wadi.

So I resign with Petronas, went to Saudi and my wife made the neccessary application for a transfer to Selangor. We were taking risk to seek change for the better. But indeed, we have seen significant improvements in Wadi since we got here and put him through extensive ABA therapy and other programs available for him here.


To be continue....